#allforgracie 

Making A Difference to children and families suffering with Neuroblastoma.
TheGracieTudorFoundation.co.uk

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Please Subscribe to our news letter for updates this is at the bottom of our website . Dust off your finest attire and don your most enchanting mask, for an evening of mystery and revelry awaits at Gracie’s birthday ball masquerade party, join us for a night of elegance and celebration at The Copthorne Hotel merryhill. Get ready to dance the night away. Indulge in decadent treats and make unforgettable memories. We carnt wait to see you there ready to create magical moments together at this enchanting event. With over 6 acts and a 3 course meal big raffles and auctions including Mike Tyson signed boxing glove and other Goodies it’s going to be a night to remember. All proceeds will go to the Gracie Tudor Foundation If you wish to attend this amazing event tickets are available directly from us or we are taking bank transfer with the following details Mr Stephen Tudor 77-33-12 20605860 Lloyds Bank Stephentudor@Thegracietudorfoundation.co.uk If paying Via Pay Pal please send as family and friends don't forget all the money goes to The Gracie Tudor Foundation and will help so many children and familiesRead More


  • Date: 13/07/2024 06:00 PM
  • Location: Brierley Hill DY5 1UR, UK (Map)
  • More Info: copthorne hotel merry hill

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ABOUT
Back in March 2023 Gracie Tudor was diagnosed with High Risk Neuroblastoma and continued her fight until October 2023 unfortunately she passed away just after high dose chemotherapy where this hard  disease returned.
As you may or may not know we raised a lot of money for Gracie to go to America for specialist treatments this money and any money we raise will help other families and children with Neuroblastoma .
Times are hard when running a family and hospital family we can help with costs to make things a little easier.
Gracie Tudor was diagnosed in March 2023 with high risk Neuroblastoma with the MYC N gene she is currently having treatment at Birmingham Children’s Hospital we started fundraising in March after reading so many stories we decided to fundraise to get extra treatment.
Gracie has the MYC N gene this means that there is a 70% chance that this can mutate and come back there are many treatments abroad that can help eliminate this gene we have raised £60,000 in under 2 weeks and have had massive overwhelming support to our goal of £300,000.
We believe we can help other families and children with Neuroblastoma 
Proud Sponsors of G's Distillery
DON'T WAIT ANY LONGER www.gsdistilley.co.uk

All for Gracie Mushrooms

These will be placed around the U.K. at various spots . Hoping people will find them and take a photo and place them somewhere else so other people can enjoy them too don’t forget to send us a photo so we can post you on our happy hunting Gracie

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What Is Neuroblastoma?

Cancer starts when cells in the body begin to grow out of control and crowd out normal cells. Cells in nearly any part of the body can become cancer, and can then spread to other areas of the body. To learn more about cancer and how it starts and spreads, 

Neuroblastoma is a cancer that starts in certain very early forms of nerve cells, most often found in an embryo or fetus. (The term neuro refers to nerves, while blastoma refers to a cancer that starts in immature or developing cells). This type of cancer occurs most often in infants and young children.

Express and star

Express and star

06/05/2020

Mother pays tribute to 'amazing' two-year-old daughter as she battles rare type of cancer

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Daily Record

Daily Record

30/04/2023

Toddler diagnosed with cancer days after being sent home from hospital with constipation

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Birmingham live

Birmingham live

30/04/2023

Toddler with 15cm cancer tumour 'misdiagnosed with constipation by A&E doctors'

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Liverpool Echo

Liverpool Echo

30/04/2023

Doctors said toddler with melon-sized tumour was just constipated

Read More
Ground News

Ground News

30/04/2023

Fund to help toddler Gracie surpasses £50,000

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Head Topics

Head Topics

30/04/2023

Toddler diagnosed with cancer days after doctor said she had constipation

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BBC News

BBC News

01/05/2023

Fundraising push to help young Stourbridge cancer patient

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David Edwards ran for 24 straight hours to help raise funds for Gracie Tudor

David Edwards ran for 24 straight hours to help raise funds for Gracie Tudor

01/05/2023

David Edwards, from Stourbridge, spent 24 hours running on a treadmill between 12pm on Sunday, April 30, and 12pm on Monday, May 1 to raise funds for Gracie Tudo

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Express

Express

13/05/2023

A&E medics thought my toddler's huge tumour was constipation'

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Fund to help toddler Gracie surpasses £50,000

Fund to help toddler Gracie surpasses £50,000

25/05/2023
Proud daughter praises father for 24-hour fundraising marathon run for poorly girl

Proud daughter praises father for 24-hour fundraising marathon run for poorly girl

25/05/2023
Fundraisers rally to help Dudley girl Gracie in cancer fight

Fundraisers rally to help Dudley girl Gracie in cancer fight

29/05/2023

Fundraisers rally to help Dudley girl Gracie in cancer fight

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Fundraisers rally to help Dudley girl Gracie in cancer fight

Fundraisers rally to help Dudley girl Gracie in cancer fight

29/05/2023

Fundraisers rally to help Dudley girl Gracie in cancer fight

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Halesowen and Dudley news

Halesowen and Dudley news

02/06/2023
Birmingham family hit £100k in fundraiser for toddler with cancer

Birmingham family hit £100k in fundraiser for toddler with cancer

03/07/2023

Birmingham family hit £100k in fundraiser for toddler with cancer

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Fundraisers rally to help brave Kingswinford tot fighting rare cancer

Fundraisers rally to help brave Kingswinford tot fighting rare cancer

03/07/2023

Fundraisers rally to help brave Kingswinford tot fighting rare cancer

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MUM’S AGONY I was told my little girl was just constipated – doctors fobbed me off with laxatives and now I need £300k to save her

MUM’S AGONY I was told my little girl was just constipated – doctors fobbed me off with laxatives and now I need £300k to save her

04/10/2023

MUM’S AGONY I was told my little girl was just constipated – doctors fobbed me off with laxatives and now I need £300k to save her

Read More
Birmingham live

Birmingham live

30/04/2023

Tribute to Gracie

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Stourbridge parents to deliver presents in daughter's memory

Stourbridge parents to deliver presents in daughter's memory

19/12/2023

Stourbridge parents to deliver presents in daughter's memory

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Christmas cheer to children's hospital

Christmas cheer to children's hospital

19/12/2023

See selfless family of girl who died of rare cancer bring Christmas cheer to children's hospital

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Hundreds of Easter eggs delivered in girl's memory

Hundreds of Easter eggs delivered in girl's memory

28/03/2024

Hundreds of Easter eggs delivered in girl's memory

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That’s life magazine

That’s life magazine

04/04/2024

Gracie’s Legacy

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Gracie’s legacy

Gracie’s legacy

04/04/2024

Gracie’s legacy

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Daves 24 hours on a treadmill

Daves 24 hours on a treadmill

01/01/1970

I am walking a 24 hour treadmill for the fund of Gracie who has high risk neuroblastoma. The funds are towards treatment in America. No donation too big or too small.

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Raffle for Gracie

Raffle for Gracie

30/04/2023

*** Raffle has now been drawn!!**** raffle for Gracie Tudor 💕 Allforgracie Tudor Photo of latest prizes and below is even more prizes added yesterday. £3 a strip ( 1 Entry per strip ) Please leave a comment or message me 💜 Draw will be this morning at around 10:30am. Thank you to everyone who has brought tickets so far 💜 ✨ Beth’s Nail Boutique 💅🏼 1x Builder gel set of nails and a colour on top ✨ Boho Bell Tents ⛺️ Teepee Package - up to 4 teepee hire including Teepee Foam Mattress & Fitted Sheet Quilt & Pillow Scatter Cushion & Cosy Blanket Fairy Lights Themed Decor Personalised Chalk Boards Breakfast Tray Worth 165! ✨ Adventure Street 🏠 Free play session for 2 adults and 2 children

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The Bridge Inn Kingswinford Raffle

The Bridge Inn Kingswinford Raffle

29/04/2023

Thank you so much to the Bridge Inn Kingswinford total raised on 1 week in raffle and donations for Gracie Allforgracie Tudor was £1000 bridge customers you have done Gracie proud , thank you 💛💛💛💛💛

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My Chocolate Makers raffle

My Chocolate Makers raffle

01/05/2023

I dropped a chocolate bouquet today into Helen at Hidden Beauty if you’re local / or a customer have a go pleaseeeeee 💛 It’s all for Gracie 💛

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Annie’s Obsessions Raffle

Annie’s Obsessions Raffle

01/05/2023

Winner Announced Number 12 🤍 ✨ Raffle £70.00 Goes Straight To Gracie’s Go Fund Me Page! ✨ Winner Gets £70 Spends! On Anything At Abbies Obsession 🍃🤍 Numbers 1-50, £2 A Number! ✨ ✨💖 All Profits Go To Gracie’s Go Fund 💖✨ 🦋 Let’s Get Gracie The Treatment She Needs 🦋 #allforgracie

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Tv Raffle Sharnie Richards

Tv Raffle Sharnie Richards

01/05/2023

This amazing raffle is now FULL!!! 😱❤️ Thank you to everyone who has took part and brought a ticket! 🎫 your amazing ❤️ And a massive thank you to Alex Bethany Martin for your donations making this possible ❤️

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Photo shoot raffle

Photo shoot raffle

01/05/2023

Photo shoot

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Pretty little thing

Pretty little thing

01/05/2023

Pretty little thing £300 raffle

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My Chocolate Makers

My Chocolate Makers

01/05/2023

My chocolate Makes made a very special bouquet for Gracie after chemotherapy she went mad for cheese and onion walkers crisps

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Gracie walk from Sedgley to Wolverhampton

Gracie walk from Sedgley to Wolverhampton

07/05/2023

Amazing turn out for Gracie walk

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Mother pays tribute to 'amazing' two-year-old daughter as she battles rare type of cance

Mother pays tribute to 'amazing' two-year-old daughter as she battles rare type of cance

Mother pays tribute to 'amazing' two-year-old daughter as she battles rare type of cancer


Clare Jones from Kingswinford has said her daughter Gracie Tudor continues to fight as she undergoes chemotherapy for neuroblastoma, a rare type of cancer that mostly affects babies and young children.


It develops from specialised nerve cells left behind from a baby's development in the womb and can spread to other organs, such as the bone marrow, bone, lymph nodes, liver and skin.

Ms Jones said the two-year-old had been diagnosed with a tumour on March 18 at Russell's Hall Hospital and had been officially diagnosed with neuroblastoma two weeks ago, with the cancer having spread to her bones recently.


She said that despite everything she had been through, including a tumour growing inside her, Gracie was strong and fun loving and amazing everyone around her with her family dealing with it as best as they could.

She said: "We found out about the tumour on Mother's Day and the only reason she had started chemo was because the tumour had grown from seven by seven centimetres to 15 by 10 in five days, so that was a shock.


"As a family, we are so positive and while it is so upsetting and heartbreaking, we know that she is still here, so we have hope.

"She's been amazing, running around and playing and the nurses just idolise her as she is such a funny character and so strong, even with things like the feeding tube and the nurses giving her her medication."

Ms Jones said she and her husband Stephen had had to give up work for the time being, Clare at Number 7 in Boots in Merry Hill and Stephen as a Steel salesman, and both were being supported by their parents while they cared for Gracie, although Ms Jones said she was hoping to go back to work soon.

There has also been a widespread reaction to Gracie's plight, with a Just Giving page set up to raise funds to send her to New York for specialist treatment not available in the UK.

Ms Jones said that the whole cost would be around £300,000 and said she has been overwhelmed with the funds already raised, currently standing at £40,682, and the response from the public.

She said: "I have been so overwhelmed with the response by everyone, particularly my work colleagues who set up the page for what was originally to take her on a day out to Disney, but as we've got the news that it's high risk, the aim has changed.

"What I would say about this is that we need more awareness of this type of cancer as I thought she was a happy and healthy child and, if I am honest, we need the vaccine here.

"We need it over here and the money will save her life and that's the truth of it."

To find out more about Gracie and to make a donation, go to gofundme.com/f/gracies-treatment-in-america

By James VukmirovicDudleyPublished: Apr 25, 2023Last Updated: Apr 25, 2023


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Toddler with 15cm cancer tumour 'misdiagnosed with constipation by A&E doctors'

Toddler with 15cm cancer tumour 'misdiagnosed with constipation by A&E doctors'

Toddler with 15cm cancer tumour 'misdiagnosed with constipation by A&E doctors

Gracie Tudor has always been a good sleeper, her mum Claire Jones says. That is how she knew something was seriously wrong with her two-year-old daughter when she was restless throughout the night.


But nothing could have prepared Claire for what the next few weeks would bring. After Gracie was screaming in pain, Claire rushed her to DudleyUrgent Care Centre at Russells Hall Hospital on March 13.

She was told by medics that the tot had constipation and they tried to send her home with laxatives. However, Claire knew something was wrong with her daughter and pushed to see a doctor.

The Trust wished Gracie's family well with fundraising efforts and said she had been treated in line with her symptoms. They added she and her family had also been supported with next steps following her full diagnosis.

After Claire pushed to see a doctor the 33-year-old was then left waiting with Gracie for twelve hours while her daughter got gradually more distressed. "We were put into a room on our own and she just slept," Claire told BlackCountryLive.

She added: "The nurses thought that she just had constipation. It took 12 hours for a doctor to come and see us - we got there at 8am and they finally came at 8pm.

"She had no cover and was sweating. She was really flush in the face and I was worried the constipation had gone septic.

"I raised the alarm and said I need a doctor right now. They said she needed fluids asap and she didn't even flinch when they put the canular in she was that lethargic."

Gracie was then admitted to the hospital where she was given antibiotics for two days before being sent home on March 15. Claire says that during this time, no investigations or scans were done.

A few days later, Gracie was crying in pain once again. Claire rushed her back to the urgent care centre at Russells Hall Hospital on March 18 and was concerned that she could have an appendicitis.

The pair were left waiting for eight hours to see a doctor. Claire, from Kingswinford, said: "I took her to A&E again and they wanted to send me home with Movicol (a laxative). I did kick off a little bit and eight hours later a doctor came to see us.

"I get it is busy and I understand that. He felt her tummy and felt something on the right side which he thought was faeces." Gracie was sent for an X-ray and ultrasound.

Claire continued: "In the meantime, they did mention to me Birmingham Children's Hospitaland said if it is an appendicitis, they can't do anything here because of her age. I was not thinking about cancer at this point.


"We went to ultrasound and the men did not speak to me. They were scanning her and she was crying and sweating - I've never seen sweat like it. He ran out of the room and punched his number into his door and grabbed the phone.

"We get back upstairs and I settle her down. Forty minutes later a nurse came to get us and I thought it was an appendicitis that went bad.

"The doctor was struggling to get words out and I said 'just tell me'. They told me they had found a large mass on her liver.

"I asked if it was cancer and they said they didn't know." Gracie was taken to Birmingham Children's Hospital by ambulance later that night.

Following two biopsies, the tot was diagnosed with a neuroblastoma on her adrenal gland. Claire said: "They thought she was bleeding internally. One doctor told us 'her illness has taken a nosedive.'"

Gracie's tumour is 15x10cm and "protrudes out of her stomach," Claire said. "Grace is 11kg at the moment, she is absolutely tiny, she is skin and bone."


The tot began chemotherapy treatments on April 6. Her mum and dad, Ste, have been told that Gracie has a 24 per cent chance of survival if she goes through the aggressive treatment.

Her parents are hoping to take her overseas for medical care not available in the UK and have launched a GoFundMe page to raise money for this. Claire said: "The symptoms are rising again with flushness and the sweating - it is a matter of life and death. We are looking at a trial in Germany and treatment in the USA."

Claire now wants other parents to be aware of the symptoms of neuroblastoma. She said: "I'm back in mom mode and try to be positive for her. All I can do is have hope.

"I can't thank people enough for their help. Parents need to know about this, it was missed for two weeks.

"If it ever gets to a point where treatment isn't working, I will not let her suffer. So we have to take it cycle by cycle and day by day."


Diane Wake, chief executive of the Dudley Group NHS Foundation Trust NHS, said: "Our thoughts are with Gracie and her family at this time and we wish them well with their fundraising efforts.

“Our staff treated Gracie in line with the symptoms that were presented and we supported the family with the next steps following her full diagnosis.”

BY

Isabelle Bates

05:30, 23 APR 2023
Birmingham Live

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Fundraising push to help young Stourbridge cancer patient

Fundraising push to help young Stourbridge cancer patient

Fundraising push to help young Stourbridge cancer patient

The family of a two-year-old girl diagnosed with a rare, aggressive form of cancer say they are overwhelmed by £40,000 being raised to help pay for experimental treatment in the US.

Gracie, from Stourbridge, was diagnosed with neuroblastoma six weeks ago, which had since spread to her bones.

Mum, Claire, said about £300,000 was needed in total to take part in a vaccine trial abroad. 

Gracie is currently receiving treatment at Birmingham Children's Hospital.


It has included three courses of chemotherapy.

The news Gracie's cancer had spread "really knocked me back", said Claire.

"But I'm back on my mode now; I'm back on the research." 

After the chemotherapy, Gracie had been "running around and eating again", Claire explained, adding: "She's so strong, she's a warrior. But we've got to get Gracie better."

The complex cancer, most common in children under five, is treatable on the NHS but survival rates are poor where relapses occur.

The family hopes Gracie can access the Bivalent Vaccine clinical study in New York, with the programme aiming to trigger a response of the immune system against neuroblastoma.

Friends, family and the wider community have all contributed to the fundraising effort, Claire said. 

"I'm so overwhelmed, they've really rallied behind us. I can't thank everyone enough," she told the BBC.


"I'd love to meet you all and give you a massive hug."

By Vanessa Pearce & Leona Smart


BBC News, West Midlands
Read More  
Fundraising push to help young Stourbridge cancer patient

Fundraising push to help young Stourbridge cancer patient

Fundraising push to help young Stourbridge cancer patient

The family of a two-year-old girl diagnosed with a rare, aggressive form of cancer say they are overwhelmed by £40,000 being raised to help pay for experimental treatment in the US.

Gracie, from Stourbridge, was diagnosed with neuroblastoma six weeks ago, which had since spread to her bones. 

Mum, Claire, said about £300,000 was needed in total to take part in a vaccine trial abroad.

Gracie is currently receiving treatment at Birmingham Children's Hospital.

It has included three courses of chemotherapy

.The news Gracie's cancer had spread "really knocked me back", said Claire.

"But I'm back on my mode now; I'm back on the research."

After the chemotherapy, Gracie had been "running around and eating again", Claire explained, adding: "She's so strong, she's a warrior. But we've got to get Gracie better."

The complex cancer, most common in children under five, is treatable on the NHS but survival rates are poor where relapses occur.

The family hopes Gracie can access the Bivalent Vaccine clinical study in New York, with the programme aiming to trigger a response of the immune system against neuroblastoma.

Friends, family and the wider community have all contributed to the fundraising effort, Claire said.

"I'm so overwhelmed, they've really rallied behind us. I can't thank everyone enough," she told the BBC. 

"I'd love to meet you all and give you a massive hug."

By Vanessa Pearce & Leona Smart


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All for Gracie bracelets

✨️🤍A l l f o r G r a c i e 🤍✨️ Bracelets available! Name the size, and I'll accommodate. Proceeds go to gracie go fund me page. Bracelets £4 , £2 from each bracelet, will go to their fundraising page! Please contact us to order #allforgracie #Homemade_Treasures #charity #fundraising #gofundme #personalised

Bands for Gracie

Support Gracie in her battle all money goes to Gracie £2

Gracie Birthday Ball 13/07/2024

An amazing night all for Gracie as she would have turned 4 come celebrate with us and help raise some money

  • Birmingham Children’s Hospital Christmas presents

  • Birmingham Children's Hospital Easter egg drop off

Gracie’s Army

The people behind the scenes Gracie’s army

  • Gracie’s Day 15 November 2023

  • Gracie walk Sedgley to Wolverhampton 07 May 2023

  • Dave Edwards 24 hour treadmill run 30th April 2023

  • Gracie Family Fun Day

  • Hells Angels Event at the Danery

  • High Acres Kingswinford raffle

  • The Bridge Inn Kingswinford

  • Heather’s Raffle

  • Jakes 1000 kick ups

  • Staffordshire Police 90ft abseil in Snowdonia 30 May 2023

  • 15,000ft skydive

  • Brierley Hill Market Hall on 3rd June

  • Ride and Joy The Danery

  • Meadows 100 miles for Gracie

  • Wordsley School Bake Sale

  • Manchesters Half-Marathon on 21st May

  • The Backyard Kingswinford

  • Dingle community primary school and to all the children who took part in the sponsored walk

  • 80s party night at the Hop House 3rd June 2023

  • Tesco Express Bromley Lane raffle

  • Heathers raffle

  • Beckey Roper raffle £100 gift voucher or 6 hour Massage

  • WIN A BOUQUET OF ANY CHOICE !!!

  • limited skull swinger set

  • Emily hair cut

  • Prime Raffle

  • Charlotte Half Marathon

  • Natalie Knight raffle

  • Staffordshire Police Cake sale

  • Lexie Davies cake sale crestwood school

  • TSFYouthGroup 16 June fundraiser Raised £700

  • WIN A 3 COURSE LUNCH MEAL & 3 COCKTAILS FOR 2!

  • My Chocolate Makers Raised £300

  • Reform Aesthetics Raffle

  • Gracie’s Glitz and Glamour Gala

  • Himley hall word of mouth festival

  • Golf Charity Raffle

Solving Kids Cancer

Solving Kids Cancer

06/05/2020

We’re fighting for a future where no child dies of the childhood cancer neuroblastoma or suffers due to its treatment

Read More
NHS Neuroblastoma

NHS Neuroblastoma

04/03/2020

Neuroblastoma Neuroblastoma is a rare type of cancer that mostly affects babies and young children.

Read More
Cancer research U.K.

Cancer research U.K.

06/02/2020

Neuroblastoma Neuroblastoma is a rare cancer that affects children, mostly under the age of 5 years old. It usually starts in the tummy (abdomen) area. We know that your child being diagnosed with cancer can be devastating. It's common to feel overwhelmed. This is a guide through the symptoms, diagnosis and treatment of neuroblastoma. We have information about where you can get support to help you cope.

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Birmingham Children’s Hospital

Birmingham Children’s Hospital

30/04/2023
The biggest problem with Neuroblastoma is awareness 
We need to get awareness with neuroblastoma and how it mimic ms normal childhood conditions. We need more testing at district hospitals so children can be fast tracked to a specialist centre. A simple urine sample can be sent to the lab and be tested for catecholamines detected in the urine. Urinary catecholamine metabolites are found in more the 85% of people with neuroblastoma. Catecholamines are organic compounds that include the hormones epinephrine (adrenaline), norepinephrine (noradrenaline), and dopamine. Release of the hormones epinephrine and norepinephrine from the adrenal medulla of the adrenal glands is part of the body's natural "fight-or-flight" response to a harmful situation, preparing itself to either quickly leave the area or stay to fight. Eventually, the body breaks down the catecholamine molecules into smaller pieces, called metabolites, which are then passed out of the body in the urine. The 2 catecholamine metabolites most often measured are homovanillic acid (HVA) or vanillylmandelic acid (VMA). We aim to get district hospitals to automatically send for this test if the child is showing symptoms.

Coming soon